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Ireland - Northern

Northern Ireland Cerebral Palsy Register (NICPR)

 

Year CP register established: 1992
Year 1st birth cohort registered: 1977
Geographic area covered: Northern Ireland (100%)
Adverse health event or disability registered: Cerebral Palsy
Population in the area: 1,850,000 inhabitants (2013)
Number of cases / year: avg. 55
Number of live births / year: 24,300 (2013)
Principal data sources: Neonatologists, hospital and community paediatricians, senior and clinical medical officers, paediatric physiotherapists, orthopaedic surgeons, death certificates, and parents.

Administrative information:

Address of the register:
Northern Ireland Cerebral Palsy Register. Room 1.36, Mulhouse Building, Queen’s University of Belfast, Institute of Clinical Science. Grosvenor Road, Belfast, BT12 6BJ
Name, speciality of the scientific professional in charge:
Oliver Perra, MD, PhD and Guiomar Garcia Jalon, MD, Research Fellow
SCPE center code: C05